Walk For PKD Soon Approaches!

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Afternoon everyone, how has your Monday been?

I have been busy with errands, decorating my new coffee bar, and searching for writing jobs but before I did all that, I made my donation to the PKD foundation and I hope you find it in your hearts to do the same.

The Walk for PKD is coming up on the 21st of this month and 100% of each donation funds life-saving PKD research. Find a local walk or donate to help my team at walkforpkd.org.

Last year your support made it possible to fund $2.5 million for research, advance projects involving 5+ potential PKD treatments now in clinical trials, and walk the road with thousands of patients and families in 60 local U.S. Chapters.

I made my donation in honor of my mother, who passed away in 2014 from complications of the disease after 18+ years on dialysis. She was a trooper and followed all of the rules, yet still succumbed to the disease. Some of you may know that I found it in myself when I went to be tested to give her a kidney, which is just one reason why I am such an advocate for fundraising today.

PKD is a fatal disease of the kidneys, short for polycystic kidney disease and affects 600,000 people in the US annually.  Close to half the people diagnosed with PKD will end up with end stage renal disease or will need dialysis or a kidney transplant.  It can affect anyone but research shows females inherit it more than males and Caucasians inherit it more than African-Americans. Also, if you inherit the disease, your child has a fifty percent chance of having it, so they need to be tested at some point as well. Just make sure they have insurance first!

The hope is that once they figure out how the cysts in the kidney form and experiment with drugs that can inhibit or block that formation,  that a cure will be found. Please get yourself tested if this disease runs in your family will you? The sooner you know, the sooner the doctors can monitor your progress, like they do mine.  Thankfully all I have is too many cysts to count,  yet they aren’t so big they interfere with kidney function.

This is what the donation page looks like

To donate in my name, go to support.pdkcure.org and search for my name. I am only $200 away from my goal, so if every one of my generous readers/followers only donated $5…well, you get the picture. I know there are many causes that need our attention this year, it has been a frightful year with all of the natural disasters that have taken place on top of the many people struggling with these and other diseases. Donate where your heart tells you and really, I do understand. Thanks in advance if you choose to donate to PKD. You can also donate in memorial of someone you knew that passed away or someone that is currently struggling with the disease.

 

Tomorrow I will have the MRI of my neck (on an unrelated issue) and I will keep y’all posted on that outcome as well. I’m hoping I can put the surgery off until after the holidays, but we do what we have to do right? Just keep me in your prayers and I will appreciate it. Y’all have a wonderful night, enjoy the cooler weather (if you have it) and I will see you next time on the patio! 

 

2 Replies to “Walk For PKD Soon Approaches!”

  1. I am so glad that you mentioned the walk because I was just thinking about it last night! I will so go donate tomorrow as it is a my bedtime tonight. You will be in my prayers as you go in for your MRI! I love you very much! Rolling on, Stephanie

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