Whats New With PKD and Me

Some of you may know from reading my old blog that I have PKD, a genetic disorder I inherited from my mother. Well, I came across an email today inviting everyone to attend the Summer Fun Day with the North Texas Chapter, which is really an event for The United Way. I wasn’t even aware there was a North Texas Chapter for PKD. That’s how out of touch I am with what’s going on in PKD news. I was aware there’s an upcoming walk for PKD in October, only because a couple of months ago, I became a member of the foundation so I might learn a little bit about the latest research for a cure. In any case, the Chapter will have a table there so people can sign up for the walk, or just learn more about the North Texas Chapter. I should probably get more involved myself, however, since I’ve been diagnosed, I am asymptomatic and honestly have not thought too much about it. I am at a certain stage and I’m managed by a doctor, I just try not to think about it much. Maybe I should. It would be nice to have a support group, meet other people with the same issues so I can someday relate, but since I’m not sick, it’s hard for me to want to be reminded of everything my mom went through. Is that wrong for me to feel like that? I realize I may be in the same boat someday, but I’m healthy right now and that’s the way I try to manage it. By eating the way I do, keeping my doctor up to speed and taking my medications. I also do some things in the alternative health realm, like using essential oils and getting flax and chia in my diet.

Anyway, I feel like I should at least try to bring awareness to a disease that a lot of the population deal with on a daily basis, so I’m going to share the flyer and the info. Maybe I’ll even go to the event or the walk. At the very least, maybe more people will learn about it and want to help. Maybe getting that email was a sign, maybe this could be the start of something new, a way for me to learn more and help others with the same problem. I could do some research and write some articles to better familiarize myself with my own disorder. What a novel idea! My wheels are starting to turn, who knows where this could lead. So, go check out the event, grab a dog or a frozen drink, heck it might even be a fun way to grab a quick lunch and get educated in the process. Let me know what you think, maybe I’ll see you there!


Have a pleasant evening, hope we talk again tomorrow!




Best Laid Plans

Somedays the best laid plan come to fruition. Today was not one of those days. Today was more like a comedy of errors that somehow still had a happy ending. The contractor was late. Then my brother in law stepped in and saved the day. My son got hurt at work and I wasn’t at home to comfort him, or at least see the offending injury and ooh over it. (5 stitches!) He lived and even plans on going to work tomorrow! I forgot I was scheduled to take my dad to the ENT, we made it, 30 minutes early in fact!

Thank goodness I had all the housework and tasks done before all of this hit the fan. My plan had been to have all those done and then hole up in the office for an intense and productive day of writing, webinar attending and possible class observing. I managed 30 minutes of a webinar…the wrong one, naturally. Of course, any learning is better than none and I always have the playback option to continue tomorrow’s webinar, if I get up early and no disasters happen before noon! Do I have a hard time saying no? Maybe. Do I have a strong commitment to family? Absolutely. And that is why, as much as I want to write, it can take a back seat when family is concerned.

Some would say I have a hard time finishing projects, and they would be right, most of the time. Those used to mean things like finishing a crocheted purse or the latest artistic endeavor. I’m trying to turn over a new leaf these days, however, so here’s to having a more productive tomorrow. Hey, at least I got my post written today. 😜

What's Your Inspiration?

I made a commitment to write every day and I’m really trying to stick to it. Which is why, even though I had nothing planned or thought out, I’m writing anyway. Some people use an editorial calendar, I never thought this would be that kind of blog. We were supposed to be able to talk about whatever, so I didn’t think it was necessary, it was a kind of off the cuff kind of thing. Still, I guess everyone has those days when inspiration just isn’t there, no fresh ideas come to the frontal lobe, whatever. I could use a word prompt, but that’s really for storytelling.

Thing is, if you want to be a better writer, you have to practice, part of that practice is getting into the habit of writing every day. Now, I made sure I’d have to write something every day by purchasing a 5 year sentence journal. The idea is, you write a sentence from a prompt on a calendar every day, the next year you do the same, from the same prompts. Then you can see where you have come in your journey. That is all fine and good, but that doesn’t get me to a certain word count every day, or increase my writing speed. If I want to be a successful writer, blogger, copywriter or whatever kind of freelance writer it is, I’ll need to do all those things and more. One day I may want to write a book, I used to think about it a lot when I was younger. Right now, I just want to freelance, because that gives me the freedom to write what I want, when I want. I’ve only been working hard at this for a year, in that time, I’ve studied a lot, written many different things,  but still have no business plan per say. I only know that I want to write about things I know and like.

I, like many others, suffer from the not-knowing-if -I’m -good-enough syndrome, however, I keep writing. I’m confident that with enough practice and commitment, I’ll eventually get there. The only pressure I’m under is that I put on myself, there’s no rush to make this dream a reality tomorrow, yet I know that if I worked really hard, I could help my family fulfill their dreams sooner. If I could make enough money to do that, wouldn’t that be awesome? I’ll keep ya posted, goodnight for now.



Many Happy Desserts

Sometimes, even people following the Paleo lifestyle like a sweet treat. Which is why I consulted my Pinterest board for some tasty ideas for ice cream-Paleofied of course! On my Everything Paleo board, I found a tempting looking ice cream called Caramel Almond Crunch from http://Flavourandsavour.com. Well, to make a long story short, I had no dates. Dates, evidently make the best caramel…not raisins. Which I subbed. Not horrible and with a few tweaks, I believe I can improve the flavor. Butter makes everything better right? My favorite (and only) butter is http://Kerrygold.com brand because it is grass-fed and simply delicious. I think if I heat the “mistake” up in a saucepan and add some butter, I’ll save this mess of a dessert I made. Now, the ice cream itself was frozen bananas, blended to a creamy texture. Then came the caramel and on top, my favorite homemade trail mix, Maple Nut Trail Mix from http://Dontmesswithmama.com.


Like I said, pretty good but could have been better. When in the kitchen, mistakes are how you learn, become inventive, and sometimes even create a new masterpiece. What are your food fails? I’d love to hear them, or any suggestions on how I might improve this one! All comments are welcome, here on the patio!

Pokemon Go?

Ok, I must be the only clueless person left in America about this craze that has hit like a hurricane in our neck of the woods. At least I am according to my son, who is staying the weekend with us. He was extremely surprised at this fact, and enjoyed the chance to explain all the nuances of the game to his mother, someone who is usually up on this type of thing. Not the game aspect of things, just like, the latest thing everyone is talking about.  While I get the gist of the game, the lengths people are going to while playing…not so much. Here’s a game where you’re doing something good for your body by getting up, out, and off the couch, walking miles to catch this funny little cartoon character, yet people are walking in front of cars, running into one another, getting robbed and all sorts of craziness, in the quest for the elusive Pokemon.

image     image

The first pic shows the warning, clearly stating at the beginning of the game, to be alert and aware of your surroundings. Hello?! And what about the fact that the game is meant to bring like minded folks together, yet everyone is walking around in a huge group, looking like zombies all over the world.

The second pic is just part of my son’s personal collection thus far. This is a guy who has been not only active in sports most of his life, but played Pokemon games as a child, so, for him and others like him, they’ve turned their childhood dream into reality. He has always been that kid who picked up any sport and played his heart out at it. So, it’s no surprise to me, his unbridled enthusiasm knows no bounds at the moment. Since he is in decent shape, my hope is that what he gains from the game is a new level of social interaction or a unique way to earn some pocket change. The ways you can profit by this game are limited only by your imagination.  It sounds like a truly evolutionary idea in gaming, however, even he sees how it’s become the perfect example of a society who knows no moderation.

image   After a hard day of painting, Pokemon Go and real live golf, even he talkes a rest sometimes! Here he is with our Shorkie, Brandy, taking five on the couch.

My take on the whole thing is, get on out there and go Pokemon Go, but for goodness sakes, BE CAREFUL!! I’ll stick to exercising in the pool for now thanks, and I’ll be watching all the shenanigans from my vantage point, here on the patio! 😉