Walk For PKD Soon Approaches!

Afternoon everyone, how has your Monday been?

I have been busy with errands, decorating my new coffee bar, and searching for writing jobs but before I did all that, I made my donation to the PKD foundation and I hope you find it in your hearts to do the same.

The Walk for PKD is coming up on the 21st of this month and 100% of each donation funds life-saving PKD research. Find a local walk or donate to help my team at walkforpkd.org.

Last year your support made it possible to fund $2.5 million for research, advance projects involving 5+ potential PKD treatments now in clinical trials, and walk the road with thousands of patients and families in 60 local U.S. Chapters.

I made my donation in honor of my mother, who passed away in 2014 from complications of the disease after 18+ years on dialysis. She was a trooper and followed all of the rules, yet still succumbed to the disease. Some of you may know that I found it in myself when I went to be tested to give her a kidney, which is just one reason why I am such an advocate for fundraising today.

PKD is a fatal disease of the kidneys, short for polycystic kidney disease and affects 600,000 people in the US annually.  Close to half the people diagnosed with PKD will end up with end stage renal disease or will need dialysis or a kidney transplant.  It can affect anyone but research shows females inherit it more than males and Caucasians inherit it more than African-Americans. Also, if you inherit the disease, your child has a fifty percent chance of having it, so they need to be tested at some point as well. Just make sure they have insurance first!

The hope is that once they figure out how the cysts in the kidney form and experiment with drugs that can inhibit or block that formation,  that a cure will be found. Please get yourself tested if this disease runs in your family will you? The sooner you know, the sooner the doctors can monitor your progress, like they do mine.  Thankfully all I have is too many cysts to count,  yet they aren’t so big they interfere with kidney function.

This is what the donation page looks like

To donate in my name, go to support.pdkcure.org and search for my name. I am only $200 away from my goal, so if every one of my generous readers/followers only donated $5…well, you get the picture. I know there are many causes that need our attention this year, it has been a frightful year with all of the natural disasters that have taken place on top of the many people struggling with these and other diseases. Donate where your heart tells you and really, I do understand. Thanks in advance if you choose to donate to PKD. You can also donate in memorial of someone you knew that passed away or someone that is currently struggling with the disease.

 

Tomorrow I will have the MRI of my neck (on an unrelated issue) and I will keep y’all posted on that outcome as well. I’m hoping I can put the surgery off until after the holidays, but we do what we have to do right? Just keep me in your prayers and I will appreciate it. Y’all have a wonderful night, enjoy the cooler weather (if you have it) and I will see you next time on the patio! 

 

Here Are My Thoughts This Morning

A Letter To Royal Caribbean

 Dear Royal Caribbean,

I was so looking forward to climbing aboard your magnificent ship on Sunday, Sept. 3 with my friends from Sertoma, to sail to places I have never been, to party and enjoy myself for one whole glorious week, however, Mother Nature intervened (as I’m sure you know) and a devastating hurricane named Harvey ruined those plans. Now, I cannot in good faith, see myself parade past tens of thousands of displaced, suffering human beings to go live it up for a week, even if I could get to Galveston (which I can’t), even if the port was open, (which it is not) and even with all of that, how can you as a company not see the horror yourself and immediately offer refunds or reschedule this particular cruise???

That’s what I would say if I could talk to or get a letter to anyone that mattered at the cruise line. I’m so bent out of shape this morning as picture after picture and story after story comes in from friends and family displaced or sheltering in place, stuck because they cannot get out and no one can get in to help. I just heard that Beaumont has lost water and an explosion at a plant in Crosby has people evacuating from that as well!

On top of all of that, my mother-in-law was just diagnosed with T-cell lymphoma and my husband is understandably distraught so the timing of this (cruise) could not be worse. I was just informed that Galveston is opening the ferry so the ships can leave out soon and get back in, no matter. It’s a shame but really, how can I leave right now. I would feel horrible, I already wish there was something I could do other than pray and maybe donate a little money. My son said he has friends up and quitting their jobs to go help (I don’t know if they are letting them anywhere near the disaster areas though) which I think is awesome. Everywhere you look you see stories of people helping each other in the wake of all the devastation. Humanity is alive and well and God bless Texas.

Here is a link to state and national organizations that are helping with Hurricane Harvey relief efforts at https://www.nvoad.org/hurricane/harvey/hurricane-harvey-how-to-help/.

Day 37-Support a Cause Week-PKD Walk

Fall is shaping up to be very busy, with all kinds of walks and festivals to help support worthy causes. Everything from my personal health issue (PKD) to one of the most famously supported causes, breast cancer awareness.

Although I have covered the PKD Walk before, it bears repeating, since I’m trying to reach a specific monetary goal for my team-$250, not that much in the big scheme of things, but if every team walking reaches their goals, it would help the foundation so much in their search for new medicines to treat and/or cure this potentially fatal disease.

image image

As stated before, you can donate a little (or a little more) to my team by heading to www.walkforpkd.org/northtexas and search my name, Kim Smyth. So far, one kind blogger that follows my blog donated $10. That was very sweet. I would like to point out that if all my followers donated just $5 each, I would definitely reach my goal. I am personally donating $50 for myself and a memorial pledge of $50 for my mother who passed away from complications of PKD in 2014.

I’m going to post these causes, each day a different one, starting with the month of Oct. and working backwards to Sept. my thought being about how much time you have to get ready for each one. Tomorrow’s post will feature some kind of walk for breast cancer, (there are so many) I wanted the latest one in October for my area so we would all have more time to get ready for it. Even if you don’t live in the area, you can make a pledge/donation at the website I will be providing.

We should all do our part to help out worthy causes when we can, don’t you agree? If you can’t help financially, they always can use volunteers. However you choose to donate, with your time, or money, it will all be greatly appreciated, and you can feel good knowing you helped make a difference.

Now a bit about PKD for those who have never heard of it. The letters stand for polycystic kidney disease, it is potentially fatal because the cysts will at some point grow large enough to choke out the kidneys and at that time one needs to either go on dialysis or get a kidney transplant. Polycystic means multiple cysts. Nothing can be done currently to remove or drain the cysts, although they are always working on finding medicines to treat it. I choose to be proactive and at least eat as well as I can, that is why I live the Paleo lifestyle. My mom chose dialysis, I found out my diagnosis when being screened as a potential donor for her. By the way, every person with PKD stands a 50/50 chance of passing it to their children. Mom was on dialysis for 18+ years and eventually, her organs started shutting down one by one and she went into a nursing home and then on hospice about a month later. She lingered another week or so, at which point they made her comfortable with medications and stopped feeding her. It was so painful to witness her wither and not be able to communicate with her due to her dementia. I assume it was a very painful and uncomfortable month for her as well, although she could not express this in words. I have decided if and when I progress, I will opt for a transplant, if I’m able. I’m told one can’t even get on the list until you become more symptomatic. Currently, I have too many cysts to count but my kidney function is fine and my lab work is perfect. I was lucky to find out early enough to get on top of it, my doctor keeps very close tabs on me.

I want to help others as well as myself, that is why I became a member of the foundation and why I’m bringing attention to this cause.

Please, go to the PKD Foundation for more information about this disease and/or how you can help. I appreciate what ever you can do, and so will thousands of others affected with this disease. Until tomorrow, see you on the patio. 😊