PKD Awareness Day!

I am helping to spread the word about PKD today because 600,000 Americans are living with this chronic, life-threatening genetic disease.

Anyone who knows me and/or follows this blog, knows I have PKD in the early stages and started participating in promoting awareness by talking about it and walking in the yearly WALK FOR PKD.

PKD Awareness Day is today, Sept 4 so I am again trying to do my part and make everyone out there understand more about what these folks are dealing with. Since I am in the early stages, I have too many cysts to count, yet they are so far small, so they are not affecting my daily life or my kidney function. Many others are undergoing dialysis or some other form of treatment to deal with their disease.

I’m helping raise awareness by placing the teal PKD ribbon on my Facebook page, and soon you will see some links from the PKD foundation to help understand what it is, fundraising efforts and how you can help, how to talk to your doctor if you or a loved one has been diagnosed, and more. I realize that right now the focus is mainly on several natural disasters ravaging the nation right now, from the hurricane in Houston, to fires raging from California to Montana, but just take a few minutes out of your day, if you don’t mind, and say a prayer for all those fighting their own battle with this disease.

Polycystic kidney disease is closer to home than you realize.
Let’s do the math: If every American has 150 acquaintances and 600,000 Americans are living with PKD, then there are only 1.2 degrees of separation between the healthy American and person with PKD.

 

I hope you don’t mind me spreading the word and helping raise awareness, you all may or may not know that the Walk For PKD is coming up in October, so you will be seeing more updates as the time gets closer.

Everyone have a spectacular Labor Day and take a minute to think about those people dealing with all types of debilitating diseases including PKD and continue saying prayers for those on the Gulf Coast affected by Hurricane Harvey.

Day 314-Because Of You

Today I am not going to do my normal Throwback Thursday instead,  I want to thank everyone who has given to my PKD walk or otherwise supported the Foundation and ask that you join me again this year as I prepare to walk again this fall. This is one of several posts you can expect before October, I will try to make future posts more exciting and fun!

PKD Foundation

Those who know me and follow my blog have all heard my story, but for those that might be new here, PKD stands for polycystic kidney disease. Currently, my status is that I have too many cysts to count, yet they are not bothering my kidney function and I am otherwise healthy. I may have bad knees and arthritis and normal aches and pains, but that’s no different than any other 56 year old! However, as far as insurance companies are concerned, my condition is considered fatal therefore, I cannot get life insurance. Thank goodness that right now I am covered by my husband’s insurance or I might be up a creek.

It is because of you and your generous support that important research has been able to take place, research that will one day bring a cure to this debilitating and potentially fatal disease. My mother had it and died from it, I also have it, but currently,  I am not in any danger and my labwork looks wonderful, praise the Lord!

You can help me by joining a walk close to you, volunteering your time serving at one of the walks or donating money for research so that we can someday find a cure. My local chapter will walk again this October and we are currently taking donations. Be a hero again, help us beat last year’s goal and know that your dollars go 100% to projects like the ones involving 5+ potential PKD treatments now in clinical trials. Last year you helped us reach the goal of 2.5+ million dollars in science and research funding and walked the road with thousands of patients and families in 60 local US Chapters.

Register today at walkforpkd.org and if you choose to support my team, great! I am in the portal North Texas Walk for PKD as Kim Smyth (I don’t actually have a “team” yet but I will by Oct.!) Thanks in advance for any help or donation you are able to give, I realize there are many causes to support out there, I appreciate you considering ours.

If you have questions or comments, please feel free to let me know. See you mañana on the patio!